Update

The new infusion drug was finally approved by the FDA on May 20th!! After a long 4 months of waiting, hopefully it will all pay off. There are a few things that still need to be done in order for me to get the medicine. Right now my doctors have sent a letter to my insurance and then the infusion center needs to verify all of the insurance benefits. Starting June 1st is when the University of Chicago Hospital will likely have the drug on site to begin giving it to patients. Also within this next week the infusion center staff needs to be trained on how to use the drug before they can give it out. We're looking at mid June now on when I will be able to have an appointment to get the infusion. I feel like everytime I talk to the doctors they just keep telling me a later and later date. So I'm hoping this mid June date won't get pushed back any later. It would be the best birthday present to me if I could be feeling back to normal again. I've struggled everyday for the past year and a half and I'm crossing my fingers that this will be the miracle I've been waiting for!

I will post an update once I hear back from my doctor! 

 -- JKL

and IM DONE!

Its official! I am done with my sophomore year in college! Wow did this semester fly by. I am just so thankful that I was able to finish off the year getting all A's in my classes and not having to withdrawal or anything like I did last year!

Today I went on 30mg of Prednisone and I am feeling the same as always. Ill be on this until Wednesday when I have my appointment at 8am in Chicago.


YAY SUMMER 2014!!


--JKL

Last week of school!

I am getting so excited. This week is my last week (filled with tons of studying for finals) at North Park University. I am hoping to get a 4.0 this semester, giving me a better chance to get into the nursing program in the fall for next spring. My health is kinda back where it has been in the past. I would say I feel good 75% of the day. Mornings are always not to great for me still, but I would take feeling this way anyway over how I felt during Easter weekend. I am slowly decreasing my Prednisone again. I just recently went from taking 40mg to 35 mg and I will be on that for 7 days. After the 7 days I will go down to 30mg and I'm heading to the University of Chicago Hospital on the 14th for a clinic check up. Dr. Kinnucan said we will figure out what to do from there. I hope I will get some answers about the new medicine I've been talking about, because I have been waiting FOREVER! 

Sooooo just about a week and a half left until I hopefully will know what I will be doing with my future and how to control my colitis. That will go by fast considering I've been waiting months and months. This whole process has been one big waiting game.


I just remember… 
I am 2 blessed 2 stress!

-- JKL