Now, I know what you're probably thinking - "what is Pouchitis?"
Well according to the Mayo Clinic website...
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"Pouchitis is an inflammation of the lining of a pouch that is
surgically created in the treatment of ulcerative colitis and certain
other diseases. Many people with serious ulcerative colitis end up
having their diseased colon removed and the bowel reconnected with this
procedure, called ileoanal anastomosis (IPAA) or J-pouch surgery.
Surgeons use the end of the small intestine (ileum) to create a pouch
shaped like the letter J. The pouch is attached internally to the area
just above the anus to hold waste before it's eliminated.
Pouchitis is a complication of IPAA that occurs in 23 to 46 percent
of people who have the procedure. Symptoms can include diarrhea,
abdominal pain and joint pain, cramps, fever, increased number of bowel
movements, nighttime fecal seepage, fecal incontinence, and a strong
feeling of the need to have a bowel movement."
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In more simple terms, Pouchitis is basically having the same symptoms of IBD that occurred before having the surgery. Well then why would you get the surgery if you might end up with the same symptoms? Pouchitis occurs in about 50% of patients who undergo this surgery. The research is being done to figure out WHY some people develop this complications when others don't.
THERE IS GOOD NEWS THOUGH!
Pouchitis is usually treated by taking antibiotics (Cipro, Flagyl...) for about 10-14 days.
Most people respond to the antibiotics and symptoms will fade within the antibiotic course. There unfortunately are some people who will still relapse and will need to continue on long term, continuous antibiotic therapy.
So WHY AM I DOING THIS...?
Well as a participant in the study, I agreed to get three "pouchoscopies" (kind of like a colonoscopy, but I don't have a colon and they are only going in the beginning part of my pouch). I had one done already in July, I'll have this one in November and then my final one in March. During the procedure, I will not be given any medications including sedation. YES, it is an uncomfortable procedure when you are fully awake... but at this point I've had it done so many times that I'm actually okay with doing it now. It only takes about 10 minutes from when they insert the scope, take biopsies and then remove the scope... so its not too bad.
Two years ago, I was doing anything to avoid the hospital and to avoid having any type of scope being done. I told myself that once I was done with all of this, I would never do this again until completely necessary. Well look at me now, choosing to be a participant in this study!
My hopes are that I will be able to help the research to improve the lives of patients with IBD. I know first hand what it is like to suffer from such a life changing disease and I want to be able for them to come up with cures and answers. For me, it's being uncomfortable and getting scoped for 10 minutes, but eventually it could possibly help change the future and change the future of others who are still dealing with the terrible symptoms that come along with having inflammatory bowel disease.
Two years ago, I was doing anything to avoid the hospital and to avoid having any type of scope being done. I told myself that once I was done with all of this, I would never do this again until completely necessary. Well look at me now, choosing to be a participant in this study!
My hopes are that I will be able to help the research to improve the lives of patients with IBD. I know first hand what it is like to suffer from such a life changing disease and I want to be able for them to come up with cures and answers. For me, it's being uncomfortable and getting scoped for 10 minutes, but eventually it could possibly help change the future and change the future of others who are still dealing with the terrible symptoms that come along with having inflammatory bowel disease.
-- JKL
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