Hospital Update #2

First of all, I just wanted to thank everyone who has been so supportive throughout all of my struggles. I have amazing family and friends. Even many people have reached out to me that I barely know and have told me stories about someone they know with this disease or even to just say "I hope you feel better." 

So today's been kinda an emotional roller coaster for me. Dr. Rubin was in here early this morning and after I told him about how I was feeling, he was very concerned. I shouldn't be feeling this bad still with all of the steroids and medications I've been on and it's very unhealthy for my body. After explaining things to me as best he could, he told me that at this point my best option is to get surgery to get my colon removed. This is something I knew I would have to get done eventually, I was just hoping I would be able to drag it out as much as I could instead of getting it at 20 years old. It was hard to hear, but I've been preparing for it for quite some time and I knew it would be an option coming back to the hospital. 

Tomorrow morning around 7:30am I will be getting another scope to make sure once more that there isn't any infections that are causing me to feel worse than I normally would. They will also take biopsys and just look at the colon to see how inflamed and damaged it really is. 

After this procedure, they will determine what steps should be taken next... Surgery being very high on the list. The team of surgeons will be coming in tomorrow to discuss the procedure with me and talk to me about how this will change my life. From what I know now, this is a three step surgery and I will be getting an ileostomy bag for a few months. I'm planning on posting diagrams and pictures about what they will be doing once I find out all of the correct information tomorrow or Wesnesday. 

Even though this is the last thing I had planned, I hope that this can finally give me the relief I've been desperately seeking for almost 2 years. 

-- JKL