So tomorrow will be a week since the first infusion. I haven't noticed anything different yet, unfortunely, but they said it could take up to the three infusions so I'm staying hopeful. Actually, things are going slightly downhill for me. I think since I have stopped taking the Tacrolimus and this new drug hasn't kicked in yet, my body isn't too happy. I've still only been taking 15mg of prednisone but I now am getting boosted up to 40mg again... Ugh when will it end?!? Hopefully this boost in the roids can give me a little relief, I don't have time to feel like shit!
I've been very busy this summer with working full time and going to a night summer class four days a week. Adding my complications from my disease on top of all this is such a pain. I am so close though! I need to look forward and stay hopeful!!!!!
I am scheduled to get my next infusion on July 15th. Crossing my fingers that I will notice some changes after that one... Please please please.
-- JKL
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